Dani Stone

I Hear Laugh Tracks

4th Anniversary of a Miracle

6 Comments

  Today marks the 4th anniversary of hope, the continued promise of a future and the celebration of a miracle.

Four years ago today my husband and I huddled together in a New York hospital room waiting to hear the prognosis of our baby girl who was in surgery. Under the watchful eye and skilled hands of Dr. Alejandro Berenstein, she was bravely undergoing her 4th angiogram to determine if a 4th embolization procedure would be needed to repair the rare disorder that had so cruelly taken up residence in her brain, Vein of Galen Malformation (VOGM).

Four years ago, we were blessed with a cure.

Today Katie is in first grade. Academically she’s meeting her milestones, loves school and excels in art, which is evident from the pile of drawings, cards and stick people adventures we have posted, filed away and piled around our home. Aside from her prominent facial veins and being mildly uncoordinated, she is the epitome of a happy, healthy 7 year old. And you know what, I’m going to attribute her lack of coordination to my less-than-athletic genes.

During the years we wandered around the VOGM lion’s den, we spoiled Katie, particularly with regard to her diet. If she didn’t want to eat it, we didn’t make her. Now we have a child who hates every vegetable except potatoes and all fruits except bananas. We’re working on it. Otherwise, her demeanor is as angelic as this picture of her on her first Halloween.  

For a child who was coddled, sheltered and spent a fair amount of time in the shade of my helicopter parenting, she continues to be a kind, thoughtful, loving little girl.

When we turned our calendar to May this year, Katie noticed the notation, “Katie – 4 year Anniversary.” She asked what it meant and I told her. She may not remember much about our trips to New York but she knows about her condition. Her response, “Oooh, does that mean I get a special dessert that night?” I laughed. I may have even snorted, because as wise as she is, wise beyond her years, she’s still only 7, and in this family, big celebrations mean big treats. I better come up with something good.

Each year on this day I’m just as grateful to God, thankful and humbled by his grace as I was four years ago.

God has big plans for Kaitlynn Jeanette Stone.

I’ve written countless stories about Katie’s experience with VOGM and I’ll keep writing them, because parents, doctors and sonogram technicians across the country still have no clue what it is.  The panic of VOGM may be fading in our lives, but it’s always at the forefront of my mind. It will always be at the forefront of my mind.

Today is a good day.

Forever and always, we thank Elizabeth, Bill and Liam for leading us to New York.

To whom much has been given, much is expected.” 
Luke 12:48

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6 thoughts on “4th Anniversary of a Miracle

  1. Didn’t know my little buddy had went through so much to read me a book about poop. Give that one a hug for me would ya?

  2. I’m sitting here with my eyes full of tears, remembering each step and the phone call saying the beast was slayed! I want to bring cake to celebrate. Loving you so much today and every day.

  3. I enjoyed reading this as I have enjoyed all of your writtings. You have made me laugh and cry. I loved seeing your daughter’s picture. You are truly an inspiration.

  4. This gave me goosebumps, in a good way. God is so good!

  5. I’m not really one to say “Awww” but damn it…Awww!
    Biggest of hugs to you and Special K.

  6. God bless you and your beautiful family! Trust in God and all will be blessed!

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